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Doctor Appointments

Navigating appointments, understanding results, and advocating effectively.

For Informational Purposes Only

Content on this page is for educational purposes only and does not constitute medical advice.

Making the Most of Every Appointment

The appointment is often only 15–20 minutes. Make it count.

Prepare written questions the night before — in priority order. Start with your most important question. Bring a notebook or phone to record answers. Ask: "What are we trying to achieve with this treatment?" "What does success look like and by when?" "What would make you change the plan?" "What should I watch for at home?"
  • Always bring the full medication list and any new supplements started since last visit
  • Bring a folder with recent lab results, scan reports, and symptom diary
  • Ask for copies of every scan report, pathology report, and clinic letter — you are entitled to these
  • If you didn't understand something, say so: 'Can you explain that in simpler terms?'
  • Ask: 'What would you recommend if this were your family member?'
  • Ask specifically about clinical trials at each decision point — not all oncologists volunteer this
  • Note the name and direct line of the specialist nurse / nurse navigator — they answer between appointments
  • If your loved one is too unwell to process information, ask to be the designated contact

Understanding Scan and Lab Results

Getting Your Paperwork in Order

  • Request copies of all pathology reports, surgery notes, and oncology letters — keep a binder
  • Store scan images on a USB drive (request from radiology) — essential for second opinions
  • Ask for a treatment summary letter at each transition point (diagnosis, end of treatment, remission)
  • Keep a log of every infusion date, drug dose, and side effects — useful for future reference
  • In the US: request a Continuity of Care Document (CCD) from your patient portal
  • UK: My GP app and NHS app give access to your records; ensure they are complete
  • India: keep physical copies of all reports — electronic records are inconsistently maintained across hospitals